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Unbounding ELSI: The Ongoing Work of Centering Equity and Justice
Chessa Adsit-Morris, Rayheann NaDejda Collins, Sara Goering, James Karabin, Sandra Soo-Jin Lee & Jenny Reardon
American Journal of Bioethics 23 (7):103-105 (2023)
Abstract
ELSI efforts long have been troubled by critiques that they privilege scientific frameworks and grant scientists the power to set ethical agendas. As the first director of the Human Genome Project’...Author's Profile
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Citations of this work
Moving toward Equity through Embedded ELSI Ethnography.Jennifer Elyse James, Leslie Riddle, Barbara Koenig & Galen Joseph - 2024 - Hastings Center Report 54 (S2):93-101.
References found in this work
The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.John M. Conley, R. Jean Cadigan, Arlene M. Davis, Eric T. Juengst, Kriste Kuczynski, Rami Major, Hayley Stancil, Julio Villa-Palomino, Margaret Waltz & Gail E. Henderson - 2023 - American Journal of Bioethics 23 (7):9-16.
Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine.Kadija Ferryman - 2023 - American Journal of Bioethics 23 (7):27-33.
Addressing Anti‐Black Racism in Bioethics: Responding to the Call.Faith E. Fletcher, Keisha S. Ray, Virginia A. Brown & Patrick T. Smith - 2022 - Hastings Center Report 52 (S1):3-11.
Bounded Justice and the Limits of Health Equity.Melissa S. Creary - 2021 - Journal of Law, Medicine and Ethics 49 (2):241-256.
Informed Refusal: Toward a Justice-based Bioethics.Ruha Benjamin - 2016 - Science, Technology, and Human Values 41 (6):967-990.
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