Les enjeux québécois de la discrimination génétique : L’expérience d’un forum en ligne

Les Ateliers de l'Éthique / the Ethics Forum 15 (1-2):4-38 (2020)
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Abstract

Empirical research regarding genetic discrimination in the province of Quebec is largely limited. As such, this study aims, through a qualitative methodology, to explore and collect the opinions, experiences and knowledge of Quebecers regarding GD. In accordance with the exploratory objectives of this study, we chose the online forum approach as a means to extract qualitative data that would most accurately represent the perspectives of the Quebec public on various themes relating to GD. Participants’ comments on the forum indicate that there are tangible fears concerning DG in Quebec as well as a need for social debate on this important issue, as an integral part of the genetic revolution and personalized healthcare.

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