Ethics in Qualitative Research: 'Vulnerability', Citizenship and Human Rights

Ethics and Social Welfare 6 (1):2-17 (2012)
  Copy   BIBTEX

Abstract

This paper poses questions regarding the ethical prioritisation in qualitative research studies on assessing a person's or a group's fitness to provide informed consent, arguing that this may have unwanted as well as desirable consequences, particularly in relation to rights of citizenship for socially marginalised populations who tend to be labelled vulnerable. Drawing on three theoretical perspectives (Arendt, Honneth and Bourdieu), it is suggested that the emphasis placed on a research participant's capacity to provide informed consent cannot be regarded solely as a protective measure for ?vulnerable? groups, but is also bound up with their social positioning as socially ?deficient? according to liberal (classical and neo-liberal) models of citizenship. Participation in a qualitative study can be seen as a dimension of the civil and human right to freedom of expression, and this can be particularly important for those labelled vulnerable as freedom of expression is a precondition for recognition and parity of status. Nevertheless, the importance of informed consent is not rejected; instead, it is posited that the protective rights accorded to vulnerable groups in qualitative research need to be considered alongside other human goods, such as the promotion of voice, agency and active citizenship

Other Versions

No versions found

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 100,937

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Bioethics, vulnerability, and protection.Ruth Macklin - 2003 - Bioethics 17 (5-6):472--486.
Response to Commentators on “Rethinking Research Ethics”.Rosamond Rhodes - 2005 - American Journal of Bioethics 5 (1):W15-W18.
Rethinking Research Ethics.Rosamond Rhodes - 2010 - American Journal of Bioethics 10 (10):19-36.
Rethinking research ethics.Rosamond Rhodes - 2005 - American Journal of Bioethics 5 (1):7 – 28.

Analytics

Added to PP
2011-07-22

Downloads
95 (#221,683)

6 months
16 (#187,891)

Historical graph of downloads
How can I increase my downloads?