Abstract

The motivations of health service users and health care professionals to engage in participative practices differ. Health service users want to improve the patient experience by reducing epistemic injustices and increasing well-being, from a social justice perspective. Six motivations underlying participation co-exist (utilitarian, methodological, democratic, consumerist, epistemic, and emancipatory). However, the compatibility of these motivations is not obvious. Moreover, democracy in health care has become protean and tensions are appearing between representative democracy and participatory democracy, of the indirect type. Combining the epistemic profiles of users with the different motivations and reasons for action, and viewing them through the prism of complementarity could alleviate these tensions.