Imperatives of Governance: Human Genome Editing and the Problem of Progress

Perspectives in Biology and Medicine 63 (1):177-194 (2020)
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Abstract

The ability to make direct genetic changes to the DNA of future children poses profound challenges for governance: should it be done? For what purposes and subject to what limitations? And, no less importantly, who should decide? As a resolution pending in the US Senate rightly states, the prospect of editing the germline "touches on all of humanity". Given this, how should we as a human community guide and govern this emerging technology?The question of how human genome editing should be governed—and by whom—has been at the heart of the debates that have unfolded over the course of the last five years....

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