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Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations
American Journal of Bioethics 18 (4):34-36 (2018)
Abstract
Through the use of culturally appropriate videos on precision medicine research (PMR) that were developed and tailored to five racial and ethnic groups of patients, and subsequent focus-group discu...Other Versions
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Citations of this work
Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine.Kadija Ferryman - 2023 - American Journal of Bioethics 23 (7):27-33.
Demonstrating ‘respect for persons’ in clinical research: findings from qualitative interviews with diverse genomics research participants.Stephanie A. Kraft, Erin Rothwell, Seema K. Shah, Devan M. Duenas, Hannah Lewis, Kristin Muessig, Douglas J. Opel, Katrina A. B. Goddard & Benjamin S. Wilfond - 2021 - Journal of Medical Ethics 47 (12):e8-e8.
The Many Moral Matters of Organoid Models: A systematic review of reasons.Andrew J. Barnhart & Kris Dierickx - 2022 - Medicine, Health Care and Philosophy 25 (3):545-560.
Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers.Caitlin E. McMahon, Nicole Foti, Melanie Jeske, William R. Britton, Stephanie M. Fullerton, Janet K. Shim & Sandra Soo-Jin Lee - 2024 - AJOB Empirical Bioethics 15 (2):108-119.
Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Nina Varsava, Kelly E. Ormond, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (5):W6-W8.
References found in this work
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.
The Precision Medicine Nation.Maya Sabatello & Paul S. Appelbaum - 2017 - Hastings Center Report 47 (4):19-29.
Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.Nanibaa' A. Garrison - 2013 - Science, Technology, and Human Values 38 (2):201-223.
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