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Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases
American Journal of Bioethics 21 (12):46-64 (2021)
Abstract
While the accumulation and increased circulation of genomic data have captured much attention over the past decade, privacy risks raised by the diversification and integration of omics have been la...Other Versions
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Citations of this work
Ownership of Genetic Data: Between Universalism and Contextualism?Henri-Corto Stoeklé & Christian Hervé - 2021 - American Journal of Bioethics 21 (12):75-77.
Scrutinizing Privacy in Multi-Omics Research: How to Provide Ethical Grounding for the Identification of Privacy-Relevant Data Properties.C. W. Safarlou, A. L. Bredenoord, R. Vermeulen & K. R. Jongsma - 2021 - American Journal of Bioethics 21 (12):73-75.
Is Dupras and Bunnik’s Framework for Assessing Privacy Risks in Multi-Omic Research and Databases Still Too Exceptionalist?Karla Alex & Eva C. Winkler - 2021 - American Journal of Bioethics 21 (12):80-82.
Whose Data, Whose Risk? Omics Privacy Concerns Should be Defined by Individuals, not Researchers.Sabrina F. Derrington, Matthew A. Deardorff, Alexander R. Judkins & Xiaowu Gai - 2021 - American Journal of Bioethics 21 (12):67-70.
Data Properties or Analytical Methodologies: Too Much Attention to the Former Ignores Concerns About the Latter.Mathias Brochhausen & D. Micah Hester - 2021 - American Journal of Bioethics 21 (12):70-72.
References found in this work
Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.John A. Lynch, Aaron J. Goldenberg, Kyle B. Brothers & Nanibaa' A. Garrison - 2019 - American Journal of Bioethics 19 (1):51-63.
Genetic Privacy: A Challenge to Medico-Legal Norms.Graeme Laurie - 2002 - New York: Cambridge University Press.
Is Genetic Exceptionalism Past Its Sell-By Date? On Genomic Diaries, Context, and Content.Thomas H. Murray - 2019 - American Journal of Bioethics 19 (1):13-15.
Respecting Context to Protect Privacy: Why Meaning Matters.Helen Nissenbaum - 2018 - Science and Engineering Ethics 24 (3):831-852.
The ambiguous nature of epigenetic responsibility.Charles Dupras & Vardit Ravitsky - 2016 - Journal of Medical Ethics 42 (8):534-541.
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