Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

American Journal of Bioethics 19 (1):51-63 (2019)
  Copy   BIBTEX

Abstract

As genomic science has evolved, so have policy and practice debates about how to describe and evaluate the ways in which genomic information is treated for individuals, institutions, and society. The term genetic exceptionalism, describing the concept that genetic information is special or unique, and specifically different from other kinds of medical information, has been utilized widely, but often counterproductively in these debates. We offer genomic contextualism as a new term to frame the characteristics of genomic science in the debates. Using stasis theory to draw out the important connection between definitional issues and resulting policies, we argue that the framework of genomic contextualism is better suited to evaluating genomics and its policy-relevant features to arrive at more productive discussion and resolve policy debates.

Other Versions

No versions found

Links

PhilArchive

    This entry is not archived by us. If you are the author and have permission from the publisher, we recommend that you archive it. Many publishers automatically grant permission to authors to archive pre-prints. By uploading a copy of your work, you will enable us to better index it, making it easier to find.

    Upload a copy of this work     Papers currently archived: 106,168

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Genomic Contextualism, Genetic Determinism, and Causal Models.Angie Boyce - 2019 - American Journal of Bioethics 19 (1):73-75.
The Streetlight Effect: Regulating Genomics Where the Light Is.Barbara J. Evans - 2020 - Journal of Law, Medicine and Ethics 48 (1):105-118.

Analytics

Added to PP
2019-01-26

Downloads
70 (#327,039)

6 months
6 (#724,158)

Historical graph of downloads
How can I increase my downloads?

References found in this work

Principles of biomedical ethics.Tom L. Beauchamp - 1989 - New York: Oxford University Press. Edited by James F. Childress.
How heritability misleads about race.Ned Block - 1996 - In Bernard Boxill, Race and Racism (Oxford Readings in Philosophy). Oxford University Press. pp. 99-128.

View all 11 references / Add more references