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Incidental findings of uncertain significance: To know or not to know - that is not the question
Most Recent Articles: Bmc Medical Ethics (forthcoming)
Abstract
Although the “right not to know” is well established in international regulations, it has been heavily debated. Ubiquitous results from extended exome and genome analysis have challenged the right not to know...Other Versions
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Biobanks and feedback.Kadri Simm - 1997 - In Ruth F. Chadwick, Mairi Levitt & Darren Shickle (eds.), The Right to Know and the Right not to Know. Cambridge University Press. pp. 55-70.
Autonomy, the Right Not to Know, and the Right to Know Personal Research Results: What Rights Are There, and Who Should Decide about Exceptions?Gert Helgesson - 2014 - Journal of Law, Medicine and Ethics 42 (1):28-37.
Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications.Graeme Laurie - 2014 - Journal of Law, Medicine and Ethics 42 (1):53-63.
A New Challenge for Research Ethics: Incidental Findings in Neuroimaging.Bert Heinrichs - 2011 - Journal of Bioethical Inquiry 8 (1):59-65.
‘The right not to know and the obligation to know’, response to commentaries.Ben Davies - 2020 - Journal of Medical Ethics 46 (5):309-310.
Autonomy, the Right Not to Know, and the Right to Know Personal Research Results: What Rights are There, and Who Should Decide about Exceptions?Gert Helgesson - 2014 - Journal of Law, Medicine and Ethics 42 (1):28-37.
The right not to know and the obligation to know.Ben Davies - 2020 - Journal of Medical Ethics 46 (5):300-303.
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Citations of this work
The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort.Rhian Touyz, Amy Subar, Ian Janssen, Bob Reid, Eldon Smith, Caroline Wong, Pierre Boyle, Jean Rouleau, F. Henriques, F. Marcotte, K. Bibeau, E. Larose, V. Thayalasuthan, A. Moody, F. Gao, S. Batool, C. Scott, S. E. Black, C. McCreary, E. Smith, M. Friedrich, K. Chan, J. Tu, H. Poiffaut, J. -C. Tardif, J. Hicks, D. Thompson, L. Parker, R. Miller, J. Lebel, H. Shah, D. Kelton, F. Ahmad, A. Dick, L. Reid, G. Paraga, S. Zafar, N. Konyer, R. de Souza, S. Anand, M. Noseworthy, G. Leung, A. Kripalani, R. Sekhon, A. Charlton, R. Frayne, V. de Jong, S. Lear, J. Leipsic, A. -S. Bourlaud, P. Poirier, E. Ramezani, K. Teo, D. Busseuil, S. Rangarajan, H. Whelan, J. Chu, N. Noisel, K. McDonald, N. Tusevljak, H. Truchon, D. Desai, Q. Ibrahim, K. Ramakrishnana, C. Ramasundarahettige, S. Bangdiwala, A. Casanova, L. Dyal, K. Schulze, M. Thomas, S. Nandakumar, B. -M. Knoppers, P. Broet, J. Vena, T. Dummer, P. Awadalla, Matthias G. Friedrich, Douglas S. Lee, Jean-Claude Tardif, Erika Kleiderman & Marcotte - 2021 - BMC Medical Ethics 22 (1):1-15.
Genetic testing for breast cancer risk, from BRCA1/2 to a seven gene panel: an ethical analysis.Erik Gustavsson, Giovanni Galvis & Niklas Juth - 2020 - BMC Medical Ethics 21 (1):1-8.
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