Results for 'Charlie Gard'

973 found
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  1. On Charlie Gard: Ethics, Culture, and Religion.Marvin J. H. Lee - 2018 - Journal of Healthcare Ethics and Administration 4 (2):1-17.
    The 2017 story of Charlie Gard is revisited. Upon the British High Court’s ruling in favor of the physicians that the infant should be allowed to die without the experimental treatment, the view of the public as well as the opinions of bioethicists and Catholic bishops are divided, interestingly along with a cultural line. American bioethicists and Catholic bishops tend to believe that the parents should have the final say while British/European bioethicists and Catholic bishops in general side (...)
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  2.  49
    Charlie Gard: in defence of the law.Eliana Close, Lindy Willmott & Benjamin P. White - 2018 - Journal of Medical Ethics 44 (7):476-480.
    Much of the commentary in the wake of the Charlie Gard litigation was aimed at apparent shortcomings of the law. These include concerns about the perceived inability of the law to consider resourcing issues, the vagueness of the best interests test and the delays and costs of having disputes about potentially life-sustaining medical treatment resolved by the courts. These concerns are perennial ones that arise in response to difficult cases. Despite their persistence, we argue that many of these (...)
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  3.  61
    Charlie Gard and the weight of parental rights to seek experimental treatment.Giles Birchley - 2018 - Journal of Medical Ethics 44 (7):448-452.
    The case of Charlie Gard, an infant with a genetic illness whose parents sought experimental treatment in the USA, brought important debates about the moral status of parents and children to the public eye. After setting out the facts of the case, this article considers some of these debates through the lens of parental rights. Parental rights are most commonly based on the promotion of a child’s welfare; however, in Charlie’s case, promotion of Charlie’s welfare cannot (...)
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  4.  18
    The Charlie Gard Case.Stephen M. Krason - 2018 - Catholic Social Science Review 23:367-370.
    This was one of SCSS President Stephen M. Krason’s “Neither Left nor Right, but Catholic” columns that appear monthly in Crisis and The Wanderer. It discusses the tragic case of Charlie Gard, the baby who a U.K. hospital would not discharge so his parents could take him to the U.S. for experimental treatment for a rare, normally terminal DNA disorder that might have saved his life. Krason says that the case illustrated a number of dangerous current trends in (...)
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  5.  69
    Why Charlie Gard’s parents should have been the decision-makers about their son’s best interests.Raanan Gillon - 2018 - Journal of Medical Ethics 44 (7):462-465.
    This paper argues that Charlie Gard’s parents should have been the decision-makers about their son’s best interests and that determination of Charlie’s best interests depended on a moral decision about which horn of a profound moral dilemma to choose. Charlie’s parents chose one horn of that moral dilemma and the courts, like Charlie Gard’s doctors, chose the other horn. Contrary to the first UK court’s assertion, supported by all the higher courts that considered it, (...)
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  6.  47
    Charlie Gard and the Limits of Parental Authority.Arthur Caplan & Kelly McBride Folkers - 2017 - Hastings Center Report 47 (5):15-16.
    The parents of Charlie Gard, who was born August 4, 2016, with an exceedingly rare and incurable disease called mitochondrial DNA depletion syndrome, fought a prolonged and heated legal battle to allow him access to experimental treatment that they hoped would prolong his life and to prevent his doctors from withdrawing life-sustaining care. Charlie's clinicians at the Great Ormond Street Hospital in London believed that the brain damage Charlie had suffered as a result of frequent epileptic (...)
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  7.  39
    Does Charlie Gard deserve to be taken off life Support?Abiola Bamijoko-Okungbaye - 2018 - Postmodern Openings 9 (1):7-21.
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  8.  52
    Conceptions of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup cases.Monique Jonas & Amanda Evans - 2020 - Bioethics 34 (7):687-694.
    In 2017 and 2018, the English courts were asked to decide whether continued life‐sustaining treatment was in the best interests of three infants: Charlie Gard, Alfie Evans and Isaiah Haastrup. Each infant had sustained catastrophic, irrecoverable brain damage. Dignity played an important role in the best interests assessments reached by the Family division of the High Court in each case. Multiple conceptions of dignity circulate, with potentially conflicting implications for infants such as Charlie, Alfie and Isaiah. The (...)
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  9.  41
    Guest editorial: Charlie Gard’s five months in court: better dispute resolution mechanisms for medical futility disputes.Thaddeus Mason Pope - 2018 - Journal of Medical Ethics 44 (7):436-437.
    British courts have adjudicated dozens of medical futility disputes over the past 10 years. Many of these cases have involved pediatric patients. All these judgements are publicly available in searchable legal reporters. And most were covered by the print or broadcast media.1 Yet, as noted by Dressler, none of these earlier cases received even a fraction of the public or scholarly attention that Charlie Gard has received. One might assess the Gard case from two different perspectives. At (...)
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  10.  43
    Is ‘best interests’ the right standard in cases like that of Charlie Gard?Robert D. Truog - 2020 - Journal of Medical Ethics 46 (1):16-17.
    Savulescu and colleagues have provided interesting insights into how the UK public view the ‘best interests’ of children like Charlie Gard. But is best interests the right standard for evaluating these types of cases? In the USA, both clinical decisions and legal judgments tend to follow the ‘harm principle’, which holds that parental choices for their children should prevail unless their decisions subject the child to avoidable harm. The case of Charlie Gard, and others like it, (...)
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  11.  93
    Hard lessons: learning from the Charlie Gard case.Dominic Wilkinson & Julian Savulescu - 2018 - Journal of Medical Ethics 44 (7):438-442.
    On 24 July 2017, the long-running, deeply tragic and emotionally fraught case of Charlie Gard reached its sad conclusion. Following further medical assessment of the infant, Charlie’s parents and doctors finally reached agreement that continuing medical treatment was not in Charlie’s best interests. Life support was subsequently withdrawn and Charlie died on 28 July 2017.Box 1 ### Case summary and timeline21–23 Charlie Gard was born at full term, apparently healthy, in August 2016. At (...)
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  12.  29
    When Doctors and Parents Don’t Agree: The story of Charlie Gard.Natasha Hammond-Browning - 2017 - Journal of Bioethical Inquiry 14 (4):461-468.
    This discussion follows a series of high profile cases involving a terminally ill child, Charlie Gard. These cases are significant as they trace the complexities that arise when parents and medical teams do not agree as well as addressing the question of whether there is a right to access experimental treatment.
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  13.  32
    Art, time, and technology.Charlie Gere - 2006 - New York: Berg.
    This book explores how the practice of art, in particular of avant-garde art, keeps our relation to time, history and even our own humanity open. Examining key moments in the history of both technology and art from the beginnings of industrialisation to today, Charlie Gere explores both the making and purpose of art and how much further it can travel from the human body.
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  14.  50
    Ethical implications of medical crowdfunding: the case of Charlie Gard.Gabrielle Dressler & Sarah A. Kelly - 2018 - Journal of Medical Ethics 44 (7):453-457.
    Patients are increasingly turning to medical crowdfunding as a way to cover their healthcare costs. In the case of Charlie Gard, an infant born with encephalomyopathic mitochondrial DNA depletion syndrome, crowdfunding was used to finance experimental nucleoside therapy. Although this treatment was not provided in the end, we will argue that the success of the Gard family’s crowdfunding campaign reveals a number of potential ethical concerns. First, this case shows that crowdfunding can change the way in which (...)
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  15.  48
    Approaches to parental demand for non-established medical treatment: reflections on the Charlie Gard case.John J. Paris, Brian M. Cummings, Michael P. Moreland & Jason N. Batten - 2018 - Journal of Medical Ethics 44 (7):443-447.
    The opinion of Mr. Justice Francis of the English High Court which denied the parents of Charlie Gard, who had been born with an extremely rare mutation of a genetic disease, the right to take their child to the United States for a proposed experimental treatment occasioned world wide attention including that of the Pope, President Trump, and the US Congress. The case raise anew a debate as old as the foundation of Western medicine on who should decide (...)
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  16.  20
    What can we learn from the case of Charlie Gard? Perspectives from an inter-disciplinary panel discussion.Ann Gallagher - 2017 - Nursing Ethics 24 (7):775-777.
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  17.  10
    The Effects of Introducing a Harm Threshold for Medical Treatment Decisions for Children in the Courts of England & Wales: An (Inter)National Case Law Analysis.Veronica M. E. Neefjes - 2024 - Health Care Analysis 32 (3):243-259.
    The case of Charlie Gard sparked an ongoing public and academic debate whether in court decisions about medical treatment for children in England & Wales the best interests test should be replaced by a harm threshold. However, the literature has scantly considered (1) what the impact of such a replacement would be on future litigation and (2) how a harm threshold should be introduced: for triage or as standard for decision-making. This article directly addresses these gaps, by first (...)
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  18. Reasonable Parental and Medical Obligations in Pediatric Extraordinary Therapy.Michal Pruski & Nathan K. Gamble - 2019 - The Linacre Quarterly 86 (2-3):198-206.
    The English cases of Charlie Gard and Alfie Evans involved a conflict between the desires of their parents to preserve their children’s lives and judgments of their medical teams in pursuit of clinically appropriate therapy. The treatment the children required was clearly extraordinary, including a wide array of advanced life-sustaining technological support. The cases exemplify a clash of worldviews rooted in different philosophies of life and medical care. The article highlights the differing perspectives on parental authority in medical (...)
     
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  19.  27
    A threshold of significant harm (f)or a viable alternative therapeutic option?Jo Bridgeman - 2018 - Journal of Medical Ethics 44 (7):466-470.
    This article critically examines the legal arguments presented on behalf of Charlie Gard’s parents, Connie Yates and Chris Gard, based on a threshold test of significant harm for intervention into the decisions made jointly by holders of parental responsibility. It argues that the legal basis of the argument, from the case of Ashya King, was tenuous. It sought to introduce different categories of cases concerning children’s medical treatment when, despite the inevitable factual distinctions between individual cases, the (...)
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  20.  40
    Clinic, courtroom or (specialist) committee: in the best interests of the critically Ill child?Richard Huxtable - 2018 - Journal of Medical Ethics 44 (7):471-475.
    Law’s processes are likely always to be needed when particularly intractable conflicts arise in relation to the care of a critically ill child like Charlie Gard. Recourse to law has its merits, but it also imposes costs, and the courts’ decisions about the best interests of such children appear to suffer from uncertainty, unpredictability and insufficiency. The insufficiency arises from the courts’ apparent reluctance to enter into the ethical dimensions of such cases. Presuming that such reflection is warranted, (...)
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  21.  17
    Introduction to the Special Issue.Martha Montello - 2018 - Perspectives in Biology and Medicine 60 (3):293-294.
    In the summer of 2017, much of the world was riveted by the case of Charlie Gard, a baby in London whose parents wanted an experimental treatment and whose doctors thought that further treatment would be futile. The case worked its way through the British courts and, eventually, was even heard by the European Court of Human Rights. Pope Francis and President Trump weighed in. If nothing else, the case revealed how controversial the issues around medical futility and (...)
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  22.  91
    Worth living or worth dying? The views of the general public about allowing disabled children to die.Claudia Brick, Guy Kahane, Dominic Wilkinson, Lucius Caviola & Julian Savulescu - 2020 - Journal of Medical Ethics 46 (1):7-15.
    BackgroundDecisions about withdrawal of life support for infants have given rise to legal battles between physicians and parents creating intense media attention. It is unclear how we should evaluate when life is no longer worth living for an infant. Public attitudes towards treatment withdrawal and the role of parents in situations of disagreement have not previously been assessed.MethodsAn online survey was conducted with a sample of the UK public to assess public views about the benefit of life in hypothetical cases (...)
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  23.  59
    Good medical ethics.John McMillan - 2018 - Journal of Medical Ethics 44 (8):511-512.
    The first editorial in the Journal of Medical Ethics described an ambition to be a ‘forum for the reasoned discussion of moral issues arising from the provision of medical care’.1 While that statement of intent might seem broad, it is one that has been reaffirmed by successive editors of the journal.2–4 It is an aim that aligns with the mission statement of JME and The Institute of Medical Ethics, to promote ‘ethical reflection and conduct in scientific research and medical conduct.’ (...)
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  24.  19
    Revolutionary Laughter: The Aesthetico-Political Meaning of Benjamin’s Chaplin.Ricardo Ibarlucía - 2019 - Aisthesis. Pratiche, Linguaggi E Saperi Dell’Estetico 12 (2):135-150.
    This paper discusses the aesthetic and political motivations of the great importance that Walter Benjamin gives to Charlie Chaplin in Das Kunstwerk im Zeitalter seiner technischen Reproduzierbarkeit. First, it proceeds to identify the main paragraphs that Benjamin devoted to Chaplin’s films in the different versions of his famous essay. Then it examines Chaplin’s reception in Weimar Germany both in the field of avant-garde art and that of press criticism, highlighting the philosophical, ethico-political and psychological arguments exchanged in a wide (...)
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  25.  49
    The Poetry and Poetics of Amiri Baraka: The Jazz Aesthetic.William J. Harris & Amin Baraka - 1985 - University of Missouri Press.
    In this study of Baraka's transformation of white avant-grade poetics into a unique black poetics, Harris argues that Baraka's work can be best understood in the context of a jazz aesthetic. Baraka, he says, has taken white avant-garde and postmodernist poetic modes and political ideas, and through a formal and social process of transformation typical of jazz revision, transformed them into a black poetics and metaphysics. Harris describes the failure of the postmodernists to provide suitable aesthetic and social solutions for (...)
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  26.  4
    L'essai au cinéma, de Chaplin à Godard.Bamchade Pourvali - 2023 - [Grâne]: Créaphis éditions.
    Comment définir l'essai au cinéma? Reprenant l'héritage des avant-gardes des années 1920, à travers notamment les œuvres de Dziga Vertov, Jean Epstein ou Jean Vigo, l'essai filmique s'inscrit dans le cinéma moderne qui se définit au moment de la deuxième guerre mondiale avec Le Dictateur (1940) de Charlie Chaplin. Cette évolution se caractérise par un retour au documentaire et de nouvelles relations entre l'image et le son. On assiste alors dans le cinéma hollywoodien, avec Citizen Kane (1941) d'Orson Welles (...)
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  27. Motivational Approaches to Intellectual Vice.Charlie Crerar - 2018 - Australasian Journal of Philosophy 96 (4):753-766.
    Despite the now considerable literature on intellectual virtue, there remains relatively little philosophical discussion of intellectual vice. What discussion there is has been shaped by a powerful assumption—that, just as intellectual virtue requires that we are motivated by epistemic goods, intellectual vice requires that we aren't. In this paper, I demonstrate that this assumption is false: motivational approaches cannot explain a range of intuitive cases of intellectual vice. The popularity of the assumption is accounted for by its being a manifestation (...)
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  28.  97
    Assertion and safety.Charlie Pelling - 2013 - Synthese 190 (17):3777-3796.
    Safety is a notion familiar to epistemologists principally because of the way in which it has been used in the attempt to cast light on the nature of knowledge. In particular, some have argued that an important constraint on knowledge is that one knows p only if one believes p safely. In this paper, I use safety for a different purpose: to cast light on the nature of assertion. I introduce what I call the safety account of assertion, according to (...)
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  29.  30
    Feasibility and social rights.Charlie Richards - 2023 - Politics, Philosophy and Economics 22 (4):470-494.
    Social interactions and personal relationships are essential for a minimally good life, and rights to such things – social rights – have been increasingly acknowledged in the literature. The question as to what extent social rights are feasible – and properly qualify as rights – however, remains. Can individuals reliably provide each other with love and friendship after trying, for instance? At first glance, this claim seems counterintuitive. This paper argues, contrary to our pre-theoretic intuitions, that individuals can reliably provide (...)
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  30. Taboo, hermeneutical injustice, and expressively free environments.Charlie Crerar - 2016 - Episteme 13 (2).
    In this paper I draw attention to a shortcoming in Miranda Fricker's 2007 account of hermeneutical injustice: that the only hermeneutical resource she acknowledges is a shared conceptual framework. Consequently, Fricker creates the impression that hermeneutical injustice manifests itself almost exclusively in the form of a conceptual lacuna. Considering the negative hermeneutical impact of certain societal taboos, however, suggests that there can be cases of hermeneutical injustice even when an agent's conceptual repertoire is perfectly adequate. I argue that this observation (...)
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  31.  48
    Religion, philosophy, and physical research.Charlie Dunbar Broad - 1953 - London,: Routledge and Kegan Paul.
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  32. The Mind and its Place in Nature.Charlie Dunbar Broad - 1925 - London, England: Routledge.
  33.  57
    Nietzschean Health and the Inherent Pathology of Christianity.Charlie Huenemann - 2010 - British Journal for the History of Philosophy 18 (1):73-89.
  34.  14
    Children's Early Understanding of Mind: Origins and Development.Charlie Lewis & Peter Mitchell - 1994 - Psychology Press.
    Drawing together researchers from diverse theoretical positions, the aim of this book is to work towards a coherent and unified account of how we develop an understanding of one's and others' mental states.
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  35. Conceptualism and the (supposed) non-transitivity of colour indiscriminability.Charlie Pelling - 2007 - Philosophical Studies 134 (2):211 - 234.
    In this paper, I argue that those who accept the conceptualist view in the philosophy of perception should reject the traditional view that colour indiscriminability is non-transitive. I start by outlining the general strategy that conceptualists have adopted in response to the familiar ‘fineness of grain’ objection, and I show why a commitment to what I call the indiscriminability claim seems to form a natural part of this strategy. I then show how together, the indiscriminability claim and the non-transitivity claim (...)
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  36.  89
    Assertion, Telling, and Epistemic Norms.Charlie Pelling - 2014 - Australasian Journal of Philosophy 92 (2):335-348.
    There has been much recent interest in questions about epistemic norms of assertion. Is there a norm specific to assertion? Is it constitutive of the speech act? Is there a unique norm of this sort? What is its content? These are important questions, so it's understandable that they have received the attention which they have. By contrast, little attention—little separate attention, at least—has been given to parallel questions about telling: Which norm or norms govern telling, etc.? A natural explanation for (...)
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  37.  48
    Kant's Mathematical Antinomies.Charlie Dunbar Broad - 1955 - Proceedings of the Aristotelian Society 55 (1):1--22.
  38. Inappropriate emotions, marginalization, and feeling better.Charlie Kurth - 2022 - Synthese 200 (2):1-22.
    A growing body of work argues that we should reform problematic emotions like anxiety, anger, and shame: doing this will allow us to better harness the contributions that these emotions can make to our agency and wellbeing. But feminist philosophers worry that prescriptions to correct these inappropriate emotions will only further marginalize women, minorities, and other members of subordinated groups. While much in these debates turns on empirical questions about how we can change problematic emotion norms for the better, to (...)
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  39.  81
    Paradox and the Knowledge Account of Assertion.Charlie Pelling - 2013 - Erkenntnis 78 (5):977-978.
    In earlier work, I have argued that self-referential assertions of the form ‘this assertion is improper’ are paradoxical for the truth account of assertion. In this paper, I argue that such assertions are also paradoxical, though in a different way, for the knowledge account of assertion.
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  40.  35
    Network di strada. Percorsi e strategie di sopravvivenza di un gruppo di senza dimora a Trento.Charlie Barnao - 2004 - Polis 18 (3):413-444.
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  41.  33
    Shadows of Cruelty: sadism, masochism and the philosophical muse–part two.Charlie Blake & Frida Beckman - 2010 - Angelaki 15 (1):1-12.
  42. Death in the plastic industry.Charlie Clutterbuck - 1986 - In Les Levidow (ed.), Radical science essays. Atlantic Highlands, N.J.: Humanities Press.
     
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  43.  30
    Indiscriminability, indeterminacy, and overlap.Charlie Pelling - 2012 - Consciousness and Cognition 21 (2):639-640.
  44. Nehemiah 5:1–13.Charlie Summers - 2011 - Interpretation: A Journal of Bible and Theology 65 (2):184-185.
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  45.  10
    Poetic Heroes: Literary Commemorations of Warriors and Warrior Culture in the Early Biblical World. By Mark S. Smith.Charlie Trimm - 2021 - Journal of the American Oriental Society 137 (4).
    Poetic Heroes: Literary Commemorations of Warriors and Warrior Culture in the Early Biblical World. By Mark S. Smith. Grand Rapids, Mich.: William B. Eerdmans Publishing Co., 2013. Pp. xiv + 636. $55.
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  46.  16
    The Chinatown Trunk Mystery: Murder, Miscegenation, and Other Dangerous Encounters in Turn-of-the-Century New York City (review).Charlie Samuya Veric - 2007 - Common Knowledge 13 (2):461-462.
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  47.  54
    The technologies and politics of delusion: an interview with artist Rod Dickinson.Charlie Gere - 2004 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 35 (2):333-349.
    Artist Rod Dickinson’s work engages in a highly intelligent and provocative manner with the conditions of mediation and delusion that appear in the brain in a vat scenario. Over the last decade he has put together an impressive body of work about the apparatuses of social and informational control with which we are surrounded, involving an eclectic range of subject matter, including crop circles, Jim Jones and the suicides at the People’s Temple in Guyana, Stanley Milgram’s ‘Obedience to authority’ experiments, (...)
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  48. Testimony, testimonial belief, and safety.Charlie Pelling - 2013 - Philosophical Studies 164 (1):205-217.
    Can one gain testimonial knowledge from unsafe testimony? It might seem not, on the grounds that if a piece of testimony is unsafe, then any belief based on it in such a way as to make the belief genuinely testimonial is bound itself to be unsafe: the lack of safety must transmit from the testimony to the testimonial belief. If in addition we accept that knowledge requires safety, the result seems to be that one cannot gain testimonial knowledge from unsafe (...)
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  49.  57
    Performance and Compensation: An Analysis of Contract Damages and Contractual Obligation.Charlie Webb - 2006 - Oxford Journal of Legal Studies 26 (1):41-71.
    Although there is an increasing body of opinion that awards of damages for breach of contract should take account of the claimant’s performance interest, there has been little in the way of analysis of what the performance interest is. Commonly the concept is put forward as simply a reformulation or reconceptualization of the expectation interest, itself hitherto regarded as the one true contractual interest. Such thinking is flawed. A closer analysis of contract doctrine shows there to be two distinct contractual (...)
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  50.  85
    Assertion and The Provision of Knowledge.Charlie Pelling - 2013 - Philosophical Quarterly 63 (251):293-312.
    Epistemic relationism in the theory of assertion is the view that an assertion's epistemic propriety depends purely on the relation between the asserter and the proposition asserted. Many accounts of assertion are relationist in this sense, including the familiar knowledge, belief, and justification accounts. A notable feature of such accounts is that they give no direct importance to the role of hearer: as far as such accounts are concerned, we need make no mention of hearers in characterising an assertion's propriety (...)
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