Patients are increasingly turning to medical crowdfunding as a way to cover their healthcare costs. In the case of Charlie Gard, an infant born with encephalomyopathic mitochondrial DNA depletion syndrome, crowdfunding was used to finance experimental nucleoside therapy. Although this treatment was not provided in the end, we will argue that the success of the Gard family’s crowdfunding campaign reveals a number of potential ethical concerns. First, this case shows that crowdfunding can change the way in which communal healthcare resources (...) are allocated. Second, within the UK’s National Health Service, healthcare is ostensibly not a market resource; thus, permitting crowdfunding introduces market norms that could commodify healthcare. Third, pressures inherent to receiving funds from external parties may threaten the ability of patients-cum-recipients to voluntarily consent to treatment. We conclude that while crowdfunding itself is not unethical, its use can have unforeseen consequences that may influence conceptions of healthcare and how it is delivered. (shrink)

Through a combination of a controlled experiment and a survey, we examine the effect of voting power on shareholders’ voting behavior at general meetings. To avoid a selection bias, common in archival voting data, we exogenously manipulate shareholders’ power to affect the outcome. Our findings suggest that, when it comes to corporate decisions involving conflicts of interest, voting power nudges shareholders to oppose management and to choose the “right” alternative, that is, vote against a proposal which _prima facie_ does not (...) serve the company’s best interest. This effect obtained even when the dissenting vote contravened the choices of all other voters. Furthermore, the drive “to do the right thing” was established as significant, above and beyond the size of the economic stake. We also demonstrate that strategic voting among institutional investors is contingent on voting power: when in a position to affect the outcome of a vote, institutional investors tend to eschew strategic considerations and display fewer consistent patterns in their voting, compared to situations in which their ability to make a difference is limited. In anticipation of a “bad” proposal to be put to vote at the general shareholder meeting, institutional investors prefer to negotiate terms with management beforehand, and vote against it only after such negotiations fail. Our results shed new light on the “behind the scenes” processes in shareholder voting and underscore the importance of institutional investor agency to corporate governance, accountability, and minority shareholder representation. (shrink)

Recent literature describing the process and pathways of the agrarian transition in Southeast Asia suggests that the rise of agricultural intensification and the growth of commodity markets will lead to the demise of swidden agriculture. This paper offers a longitudinal overview of the conditions that drive the agrarian transition amongst indigenous swidden cultivators and migrant paddy farmers in central Palawan Island, the Philippines. In line with regional agrarian change, we describe how a history of conservation policies has criminalized and pressured (...) swidden farmers to adopt more intensive “modern” agricultural practices. We examine how indigenous swidden cultivators adjust their practice in response to recent changes in policies, security of harvests, and socio-cultural values vis-à-vis intensification. Rather than suggest that this transition will lead to the demise of swidden, results reveal that farmers instead negotiate a shifting ground in which they lean on and value swidden as a means of negotiating agrarian change. (shrink)

This article is the story of the partition of Moldova into two republics after the short war of the Dniestr in 1992. It is for the most part a narrative drawing on field notes gathered in June 1993 from witnesses and actors in the drama. Its consequences have relegated Moldova, a flourishing soviet republic well known for its high-quality wines and its specialized industrial products within a large military-industrial complex, to the rank of one of the poorest post-soviet entities, struggling (...) with terrible problems of survival. Numbers of its inhabitants have been thrown into every kind of trafficking (drugs, prostitution, illegal work). This story and its commentary aim to reveal the exacerbation of tensions that occurred between the end of perestroïkaand the breakup of the USSR – a period of confused loyalties, inter-ethnic and nationalist crisis, and difficult negotiations between the great powers over sharing out zones of influence. (shrink)

The metaphor of culture as a space or environment of meaning is widely employed. Going beyond metaphor, we present a model of culture as a 3-dimensional Euclidean space, using data from Brazil on cultural models of life goals. The dimensions of this space are defined by degree of sharing of culture (cultural competence); alternate configurations of that shared meaning (residual agreement); and social practice (cultural consonance). A cultural distance metric calculated within those dimensions identifies an individuals’ proximity to prototypical goals; (...) greater distance from these goals is associated with higher psychological distress. Cultural distance is in turn influenced by one’s sense of personal agency. Finally, in a set of open-ended interviews, the more individuals employ spatial metaphors in talking about culturally defined life goals, the higher their sense of personal agency and cultural consonance. This model moves the discussion of culture as a space of meaning from metaphor to measurement. (shrink)

Résumé Cet article se veut une chronique de la partition de la Moldavie en deux républiques après la brève guerre du Dniestr de 1992. Il s’agit principalement d’un récit établi à partir de notes de terrain recueillies en juin 1993 auprès de témoins et acteurs de ce drame. Ses conséquences ont relégué la Moldavie, florissante république soviétique, bien connue pour ses vins de qualité et ses produits industriels spécifiques au sein d’un grand complexe militaro-industriel, au rang de l’une des plus (...) pauvres entités post-soviétiques, aux prises avec de terribles problèmes de survie. Nombre de ses habitants ont été jetés sur les routes de tous les trafics (drogue, prostitution, travail clandestin). Cette chronique et ses commentaires entendent mettre en lumière l’exacerbation des tensions qui est survenue entre la fin de la perestroïka et l’implosion de l’URSS – période de confusion des loyautés, de crises interethniques et nationalistes, et de tractations troubles entre grandes puissances pour le partage de leurs zones d’influence. (shrink)

Résumé Ce texte explicite l’objectif du présent numéro sur les frontières et les identités mouvantes. Il situe cette interrogation dans le contexte de la constitution de blocs macro-régionaux et de la fin de la bipolarité. Il tend à montrer les incidences d’un tel contexte sur le fonctionnement des zones frontalières et celui des identités qu’elles ont forgées au cours du temps long de l’histoire moderne. Cet article voudrait mettre en évidence l’émergence du dogmatisme de la religion du capital sous les (...) nouveaux visages d’un culturalisme anthropologique multiforme. Sous l’effet d’une médiatisation sans précédent au plan mondial, ce dernier semble bien devenir la nouvelle grille de lecture des grands évènements du monde dont s’emparent, sans vrai discernement, nombre d’acteurs du politique. L’un des principaux traits de notre recueil d’articles est de mettre en avant que les auteurs qui y ont contribué, tout en appartenant à différentes écoles de pensée, ont tous cherché à s’en démarquer ou à en montrer tout au moins les limites. Pour terminer, en s’inspirant de l’œuvre de Jacques Derrida, il souhaiterait livrer certaines clés de lecture et de compréhension. (shrink)

Instructing values is being increasingly regarded as an educational goal of religious teaching. However, the concept of value, which forms the basis of this opinion, is problematic from a sociological, philosophical and a theological point of view, and is last, but not least from an educational perspective, equally problematic. It is only partially possible to target attitudes and opinions towards values and define them as educationally intended. Attitudes and opinions towards values are more likely side-etlects of the educational process. Religious (...) education should principally differ from concepts such as the school subject »Lebensgestaltung-Ethik-Religionskunde« in Brandenburg. (shrink)

The religious identity of Turkey’s Alevis, with the origins of their traditions, and in particular their relation to Islam, are the focus of a debate current in Turkey as well as in those western European countries with strong Turkish migrant populations. This debate began in the late 1980s, with the public coming-out of the Alevi community, when the Alevis set out on a manifest campaign to be recognized as a distinct cultural and/or religious tradition. Against the backdrop of this debate, (...) this article discusses the impact of Turkish politics of doxa on the possibilities of Alevi representation in Turkey. It gives particular attention to the implication of secularism and nationalism in the knowledge regime that subscribes heterodoxy to the Alevis – an ascription that secures their principal integratability in the Turkish nation, while at the same time preparing the ground for otherizing them from the Sunni majority perspective. (shrink)

In this article I propose to explore the meanings, mechanisms and issues at stake in the reconstitution of identities which can now be seen taking place in the countries of the post-communist space. We shall consider this space not as a thing in itself, but in terms of its old and new interactions with the countries of western Europe, in order to understand the phenomena of reconstructed identities in general, in the context of their relationship to the period of globalisation (...) in which we now find ourselves. (shrink)

Scholars from different disciplines are seeking to construct the new field of post-communism, which has been created by the implosion of the communist regime. They explore the most important dimensions of the differences between various types of space and geographical territories: the spaces of identity and the social, political and geopolitical spaces in certain countries of Central Europe (Poland, Hungary, the Czech Republic, Slovakia), the Balkans (Albania, Bosnia, Bulgaria, Macedonia, Romania, Serbia) and the Russian world and its Eurasian borders (Russia, (...) Mongolia, Buriatia, Kazakhstan, Moldavia and the Baltic states) not to mention the borders of the Middle or Far Eastern communist world (descriptions of China and the Middle East). (shrink)

This text lays out the purpose of the current issue on shifting borders and identities. It places this question in the context of the formation of macro-regional blocs and the end of bipolarization. It moves towards showing the repercussions of this context for the functioning of border zones and the identities they have fashioned over the long period of modern history. The article aims to reveal the emergence of the dogmatism of the religion of capital beneath the new faces of (...) a multifaceted anthropological culturalism. As a result of an unprecedented media exposure on a worldwide scale, this seems to be turning into the new model for understanding the great world events, which are being taken over by a number of political actors without any real discernment. One of the chief features of our collection of articles is that they highlight the fact that the contributing authors, while belonging to different schools of thought, have all tried to stand apart from them or at least show they have limits. To conclude, in taking its inspiration from the work of Jacques Derrida, this article would like to provide some keys to reading and understanding. (shrink)

As world food and fuel prices threaten expanding urban populations, there is greater need for the urban poor to have access and claims over how and where food is produced and distributed. This is especially the case in marginalized urban settings where high proportions of the population are food insecure. The global movement for food sovereignty has been one attempt to reclaim rights and participation in the food system and challenge corporate food regimes. However, given its origins from the peasant (...) farmers' movement, La Via Campesina, food sovereignty is often considered a rural issue when increasingly its demands for fair food systems are urban in nature. Through interviews with scholars, urban food activists, non-governmental and grassroots organizations in Oakland and New Orleans in the United States of America, we examine the extent to which food sovereignty has become embedded as a concept, strategy and practice. We consider food sovereignty alongside other dominant US social movements such as food justice, and find that while many organizations do not use the language of food sovereignty explicitly, the motives behind urban food activism are similar across movements as local actors draw on elements of each in practice. Overall, however, because of the different histories, geographic contexts, and relations to state and capital, food justice and food sovereignty differ as strategies and approaches. We conclude that the US urban food sovereignty movement is limited by neoliberal structural contexts that dampen its approach and radical framework. Similarly, we see restrictions on urban food justice movements that are also operating within a broader framework of market neoliberalism. However, we find that food justice was reported as an approach more aligned with the socio-historical context in both cities, due to its origins in broader class and race struggles. (shrink)

I develop an interpretation of Maurice Merleau-Ponty's concept of motor intentionality, one that emerges out of a reading of his presentation of a now classic case study in neuropathology—patient Johann Schneider—in Phenomenology of Perception. I begin with Merleau-Ponty's prescriptions for how we should use the pathological as a guide to the normal, a method I call triangulation. I then turn to his presentation of Schneider's unusual case. I argue that we should treat all of Schneider's behaviors as pathological, not only (...) his abstract movements, as is commonly acknowledged in the secondary literature, but also crucially his concrete movements. Using these facts of Schneider's illness, I reconstruct a ‘fundamental function’ of consciousness, as Merleau-Ponty called it, in which there are two kinds of bodily agency: the power of the body to be solicited by a situation and the power of the body to project a situation. I propose that these powers became dissociated in Schneider's case, as evidenced by his abstract and concrete movements, while in the normal case, these powers comprise a dynamic unity, enacted as motor intentionality. I also discuss how my interpretation complements Merleau-Ponty's assertion that motor intentions exist between mind and matter. (shrink)

In this paper we argue the need to reimagine research ethics frameworks to include notions of environmental sustainability. While there have long been calls for healthcareethics frameworks and decision-making to include aspects of sustainability, less attention has focused on howresearchethics frameworks could address this. To do this, we first describe the traditional approach to research ethics, which often relies on individualised notions of risk. We argue that we need to broaden this notion of individual risk to consider issues associated with (...) environmental sustainability. This is because research is associated with carbon emissions and other environmental impacts, both of which cause climate change health hazards. We introduce how bioethics frameworks have considered notions of environmental sustainability and draw on these to help develop a framework suitable for researchers. We provide a case study of data-driven health research to apply our framework. (shrink)

This study examines the cognitive resources underlying the attribution of stigma in substance use and misuse. A cultural model of substance misuse risk was elicited from students at a major U.S. state university. We found a contested cultural model, with some respondents adopting a model of medical risk while others adopted a model of moral failure; agreeing that moral failure primarily defined risk led to greater attribution of stigma. Here we incorporate general beliefs about moral decision-making, assessed through Moral Foundations (...) Theory. Specifically, we examined commitment to each moral foundation in relation to stigma attribution while controlling for the specific model of substance misuse risk. We found an interaction between the purity moral foundation and the cultural model of risk. This suggests that broad moral orientations, along with more specific understandings of substance misuse risk, combine to orient an individual with respect to stigma attribution. (shrink)

Gilbert Ryle famously wrote that practical knowledge (knowing how) is distinct from propositional knowledge (knowing that). This claim continues to have broad philosophical appeal, and yet there are many unsettled questions surrounding Ryle’s basic proposal. In this article, I return to his original work in order to perform some intellectual archeology. I offer an interpretation of Ryle’s concept of action that I call ‘adverbialism’. Actions are constituted by bodily behaviours performed in a certain mode, style or manner. I present various (...) challenges to adverbialism – scenarios in which it seems we publicly behave one way, but privately feel another. And I offer a response – Ryle’s stated practice of re-describing those situations in ways that pose no threat to his adverbialism. I also present an interpretation of practical knowledge in Ryle’s work. Knowing how is a special kind of action, undertaken only when we progressively self-modify our behaviours in the presence of new challenges or opportunities. (shrink)

In April 2020, close to the start of the first U.K. COVID-19 lockdown, the U.K. government announced the development of a COVID-19 contact tracing app, which was later trialled on the U.K. island, the Isle of Wight, in May/June 2020. United Kingdom surveys found general support for the development of such an app, which seemed strongly influenced by public trust. Institutions developing the app were called upon to fulfil the commitment to public trust by acting with trustworthiness. Such calls presuppose (...) that public trust associated with the app can emerge if the conditions for trustworthiness are met and that public trust is simplistic, i.e., linearly the sum of each member of the publics’ individual – U.K. government trust relationship. Drawing on a synthesis of the trust literature and fifteen interviews with members of the public trialling the app on the Isle of Wight, this paper aims to explore what trust mechanisms and relationships are at play when thinking about public trust in the context of the U.K. COVID-19 app. We argue that public trust is a complex social phenomenon and not linearly correlated with institutional trustworthiness. As such, attention needs to widen from calls for trustworthy infrastructures as a way to build public trust, to a deeper understanding of those doing the trusting; in particular, what or whom do people place their trust in when considering whether using the app and why. An understanding of this will help when trying to secure public trust during the implementation of necessary public health measures. (shrink)

This paper examines the consequences of a culture of “personal ethics” when using new methodologies, such as the use of social media sites as a source of data for research. Using SM research as an example, this paper explores the practices of a number of actors and researchers within the “Ethics Ecosystem” which as a network governs ethically responsible research behaviour. In the case of SM research, the ethical use of this data is currently in dispute, as even though it (...) is seemingly publically available, concerns relating to privacy, vulnerability, potential harm and consent blur the lines of responsible ethical research behaviour. The findings point to the dominance of a personal, bottom-up, researcher-led, ‘ethical barometer’ for making decisions regarding the permissibility of using SM data. We show that the use of different barometers by different researchers can lead to wide disparities in ethical practice - disparities which are compounded by the lack of firm guidelines for responsible practice of SM research. This has widespread consequences on the development of shared norms and understandings at all levels, and by all actors within the Ethics Ecosystem, and risks inconsistencies in their approaches to ethical decision-making. This paper argues that this governance of ethical behaviour by individual researchers perpetuates a negative cycle of academic practice that is dependent on subjective judgements by researchers themselves, rather than governed by more formalised academic institutions such as the research ethics committee and funding council guidelines. (shrink)

Gabriel Vacariu (2020) Unbelievable similarities - selected authors (Sean Carroll, Frank Wilczek, Carlo Rovelli, Kastner, Kauffman et all, Lee Somlin, Markus Gabriel) from much bigger manuscript (Gabriel Vacariu, (June 2020 to 2014) The UNBELIEVABLE SIMILARITIES between the ideas of some people (2011-2016) and my ideas (2002-2008) in physics (quantum mechanics, cosmology), cognitive neuroscience, philosophy of mind, and philosophy (this manuscript would require a REVOLUTION in international academy environment!) here -/- (During last 4 years, I have sent this updated manuscript to (...) thousands of people from many countries in each year! They have no chances!!!) All my main ideas (the mind-brain problem, main problems of cognitive science and quantum mechanics, Einstein’s relativity vs. quantum mechanics, etc.) from my Springer’s book (2016) can be found in my PhD thesis (2007), UNSW (Sydney, Australia, officially posted on university’s website, FREE, by the university’s Staff in 2007) . (shrink)

BackgroundThe health sector aims to improve health outcomes and access to healthcare. At the same time, the sector relies on unsustainable environmental practices that are increasingly recognised to be catastrophic threats to human health and health inequities. As such, a moral imperative exists for the sector to address these practices. While strides are currently underway to mitigate the environmental impacts of healthcare, less is known about how health researchers are addressing these issues, if at all.MethodsThis paper uses an interview methodology (...) to explore the attitudes of UK health researchers using data-intensive methodologies about the adverse environmental impacts of their practices, and how they view the importance of these considerations within wider health goals.ResultsInterviews with 26 researchers showed that participants wanted to address the environmental and related health harms associated with their research and they reflected on how they could do so in alignment with their own research goals. However, when tensions emerged, their own research was prioritised. This was related to their own desires as researchers and driven by the broader socio-political context of their research endeavours.ConclusionTo help mitigate the environmental and health harms associated with data-intensive health research, the socio-political context of research culture must be addressed. (shrink)

The UK’s 100,000 Genomes Project has the aim of sequencing 100,000 genomes from UK National Health Service (NHS) patients while concomitantly transforming clinical care such that whole genome sequencing becomes routine clinical practice in the UK. Policymakers claim that the project will revolutionize NHS care. We wished to explore the 100,000 Genomes Project, and in particular, the extent to which policymaker claims have helped or hindered the work of those associated with Genomics England – the company established by the Department (...) of Health to deliver the project. We interviewed 20 individuals linked to, or working for Genomics England. Interviewees had double-edged views about the context within which they were working. On the one hand, policymakers’ expectations attached to the venture were considered vacuous “genohype”; on the other hand, they were considered the impetus needed for those trying to advance genomic research into clinical practice. Findings should be considered for future genomes projects. (shrink)

This paper assesses arguments that paying for housework compromises the moral integrity of either the buyer or seller or both. I find that none provides adequate justification for avoiding paying for housework. Instead, I argue that the vigorous pursuit of justice for women workers will best remedy injustice in service sector occupations, including paid housework.