Results for 'Declan Devane'

153 found
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  1.  20
    What do patients value as incentives for participation in clinical trials? A pilot discrete choice experiment.Akke Vellinga, Colum Devine, Min Yun Ho, Colin Clarke, Patrick Leahy, Jane Bourke, Declan Devane, Sinead Duane & Patricia Kearney - 2020 - Research Ethics 16 (1-2):1-12.
    Incentivising has shown to improve participation in clinical trials. However, ethical concerns suggest that incentives may be coercive, obscure trial risks and encourage individuals to enrol in cli...
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  2. Should DBS for Psychiatric Disorders be Considered a Form of Psychosurgery? Ethical and Legal Considerations.Devan Stahl, Laura Cabrera & Tyler Gibb - 2018 - Science and Engineering Ethics 24 (4):1119-1142.
    Deep brain stimulation (DBS), a surgical procedure involving the implantation of electrodes in the brain, has rekindled the medical community’s interest in psychosurgery. Whereas many researchers argue DBS is substantially different from psychosurgery, we argue psychiatric DBS—though a much more precise and refined treatment than its predecessors—is nevertheless a form of psychosurgery, which raises both old and new ethical and legal concerns that have not been given proper attention. Learning from the ethical and regulatory failures of older forms of psychosurgery (...)
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  3.  59
    On Poor Religious Coping: Spiritually Assessing Christianity's Great Theologians.Devan Stahl - 2013 - Christian Bioethics 19 (3):299-312.
  4.  19
    Why Medicine Needs a Theology of Monstrosity.Devan Stahl - 2022 - Journal of Medicine and Philosophy 47 (5):612-624.
    For centuries, philosophers and theologians debated the meaning of monstrous births. This article describes the debates that took place in the early modern period concerning the origins of monstrous births and examines how they might be relevant to our understanding of disability today. I begin with the central questions that accompanied the birth of conjoined twins in the early 17th century as well as the theological origins of those questions. I then show the shifts that occurred in philosophical debate in (...)
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  5.  34
    Understanding the Voices of Disability Advocates in Physician-Assisted Suicide Debates.Devan Stahl - 2021 - Christian Bioethics 27 (3):279-297.
    Christians have an obligation to attend to the voices of persons who are crying out that their dignity and very lives are in jeopardy when physician-assisted suicide becomes legalized. The following essay begins with an account of the concept of “disability moral psychology,” which elucidates the unique ways persons with disabilities perceive the world, based on their phenomenological experience. The author then explores the disability critique of PAS and the shared social conditions of persons who are chronically disabled and terminally (...)
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  6.  59
    Gender, Rhetoric and Print Culture in French Renaissance Writing.Devan Baty & Floyd Gray - 2002 - Substance 31 (2/3):292.
  7.  16
    The failure of individualism: a documented essay.Richard S. Devane - 1948 - Westport, Conn.: Greenwood Press.
  8.  8
    Bioenhancement technologies and the vulnerable body: a theological engagement.Devan Stahl (ed.) - 2023 - Waco, Texas: Baylor University Press.
    Examines the promises and perils of bioenhancement technologies for those most vulnerable to health disparities: persons with disabilities, racial and ethnic minorities, and women.
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  9.  24
    Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research.Devan M. Duenas, Benjamin S. Wilfond & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):8-10.
    The regulations dictating acceptable levels of risk in pediatric research were developed to protect pediatric research participants from unnecessary or excessive harms. These special protections we...
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  10.  47
    Suffering Illness as an Ascetic: Lessons for Women in Pain.Devan Stahl - 2023 - Christian Bioethics 29 (3):244-255.
    Women’s pain remains underappreciated, undertheorized, and undertreated in both medicine and theology. The ascetic practices of women in pain, however, can help Christians understand and navigate their own pain and suffering, particularly because they are experienced in the context of chronic illness and disability. In what follows, I argue that Christians would do better to view the pain that accompanies disability and chronic illness as a potential resource for spiritual practice rather than an example of sin or evil. I begin (...)
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  11.  62
    Living into the imagined body: how the diagnostic image confronts the lived body.Devan Stahl - 2013 - Medical Humanities 39 (1):53-58.
    In this paper I will show how the medical image, presented to the patient by the physician, participates in medicine's cold culture of abstraction, objectification and mandated normativity. I begin by giving a brief account of the use of anatomical imaging since the Renaissance to show how images have historically functioned in contrast to how they are currently used in medical practice. Next, I examine how contemporary medical imaging techniques participate in a kind of knowledge production that objectifies the human (...)
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  12.  52
    Building Better Humans? Refocusing the Debate on Transhumanism.Devan Stahl - 2017 - NanoEthics 11 (2):209-212.
  13.  40
    Moral Evaluations of Genetic Technologies.Devan Stahl - 2015 - The National Catholic Bioethics Quarterly 15 (3):477-489.
    The author argues that genetic technologies can never be fully sepa­rated from their eugenic ends. Because of this, the Church’s sexual ethic must be integrated with its social teaching to respond faithfully to ethical issues that arise with the use of genetic technologies. The author discusses, first, the Catholic opposition to eugenics from the turn of the twentieth century to the official papal condemnation of eugenics in 1930; next, the Church’s reaction to advances in DNA research in the 1950s and (...)
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  14.  23
    Researcher Obligations to Participants in Novel COVID-19 Vaccine Research.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2023 - American Journal of Bioethics 23 (10):119-120.
    The rapid development of COVID-19 vaccines in 2020 involved an unprecedented clinical research initiative. The case here involves a Phase I clinical trial of “second-generation” COVID-19 vaccines d...
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  15.  15
    To Disclose or Not to Disclose: Secondary Findings of XXY Chromosomes.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2022 - American Journal of Bioethics 22 (10):87-88.
    Genomic sequencing is becoming more common both in clinical practice and as a routine aspect of much research. Over the last 15 years there has been ongoing discussion about the implications of gen...
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  16.  17
    Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):102-103.
    Volume 20, Issue 4, May 2020, Page 102-103.
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  17.  21
    Disability's challenge to theology: genes, eugenics, and the metaphysics of modern medicine.Devan Stahl - 2022 - Notre Dame, Indiana: University of Notre Dame Press.
    This book uses insights from disability studies to understand in a deeper way the ethical implications that genetic technologies pose for Christian thought. Theologians have been debating genetic engineering for decades, but what has been missing from many theological debates is a deep concern for persons with genetic disabilities. In this ambitious and stimulating book, Devan Stahl argues that engagement with metaphysics and a theology of nature is crucial for Christians to evaluate both genetic science and the moral use of (...)
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  18.  31
    Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2021 - American Journal of Bioethics 21 (4):98-99.
    As medicine and science advance, new ethical questions emerge. Over time, deliberation and analysis result in a somewhat settled approach to a problem. Often the settled approach is based on group...
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  19.  28
    Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (10):82-83.
    Volume 20, Issue 10, October 2020, Page 82-83.
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  20.  29
    Patient reflections on the disenchantment of techno-medicine.Devan Stahl - 2018 - Theoretical Medicine and Bioethics 39 (6):499-513.
    Over one hundred years after Max Weber delivered his lecture “Science as a Vocation,” his description of the work of the physician in a disenchanted world still resonates. As a chronically ill patient who interacts with physicians frequently, I struggle with reconciling my understanding of my ill body with how my physician makes sense of my illness. My diagnosis created an existential crisis that caused me to search for meaning in my embodied experience, but I soon learned there is little (...)
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  21.  6
    Scans and Prints.Devan Stahl - 2024 - Perspectives in Biology and Medicine 67 (4):496-506.
    This essay reflects on occasions when images of the author’s body stirred wonder and challenged the author’s understanding of her relationship to her body. Wonder is not a sentimental or romantic feeling, but an intermingling of both admiration and fear. Wonder is perhaps closest to awe, which has connotations of both reverence and terror. Wonder holds together both the negative and positive emotions that awe once elicited. Finding wonder in your own body, therefore, can be both a fearful and exhilarating (...)
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  22.  23
    The Prophetic Challenge of Disability Art.Devan Stahl - 2019 - Journal of the Society of Christian Ethics 39 (2):251-268.
    For many persons with chronic illness and disability, medical images can come to represent their stigmatized “otherness.” A growing group of artists, however, are transforming their medical images into works of visual art, which better represent their lived experience and challenge viewers to see disability and illness differently. Although few of these artists are self-professed Christians, they challenge the Church to live into the communion to which it has been called. Using a method of correlation, Christian ethicists can find within (...)
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  23.  35
    Intersections and Methods in Disability Theology: Bioethics and Critical Studies as Dialogue Partners.Devan Stahl & Leonard Curry - 2022 - Journal of the Society of Christian Ethics 42 (1):153-168.
    Disability theology has been a small but growing field over the past thirty years. This paper reviews the current methods used in the discipline and proposes ways to move the field forward. Two intersections between disability studies and Christian theological ethics are explored in particular: bioethics and critical theory. Bioethics helps to address the material health and wellbeing concerns of people with disabilities and the discriminatory attitudes about disability that stem from the medical field. Critical theory on the other hand, (...)
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  24.  21
    When Professional Meets Personal: How Should Research Staff Advertise on Social Media for Research Opportunities?Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2021 - American Journal of Bioethics 21 (10):38-39.
    As part of the regulatory review process, both the Food and Drug Administration and Office for Human Research Protections (U.S. Department of Health and Human Services [HHS]...
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  25.  27
    The Devil’s Redemption: A New History and Interpretation of Christian Universalism, Volumes 1 and 2, by Michael J. McClymond. [REVIEW]Benjamin B. DeVan - 2019 - Faith and Philosophy 36 (3):413-419.
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  26.  23
    Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (4):111-113.
    Volume 20, Issue 4, May 2020, Page 111-113.
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  27.  26
    Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (10):90-91.
    Volume 20, Issue 10, October 2020, Page 90-91.
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  28.  25
    Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.Stephanie A. Kraft, Devan M. Duenas, Hannah Lewis & Seema K. Shah - 2020 - American Journal of Bioethics 20 (5):31-33.
    Volume 20, Issue 5, June 2020, Page 31-33.
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  29.  56
    Is God a Monster? Nuanced Divine and Human Morality in Hebrew Scriptures.DeVan Benjamin B. - 2011 - Journal for the Study of Religions and Ideologies 10 (30):383-389.
    Review of Paul Copan, Is God a Moral Monster? Making Sense of the Old Testament God, (Grand Rapids: Baker, 2011).
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  30.  29
    Reexamining the categorical exclusion of pediatric participants from controlled human infection trials.Sean C. Murphy, Devan M. Duenas, Thomas L. Richie & Seema K. Shah - 2020 - Bioethics 34 (8):785-796.
    ABSTRACT Controlled human infection (CHI) models have been developed for numerous pathogens in order to better understand disease processes and accelerate drug and vaccine testing. In the past, some researchers conducted highly controversial CHIs with vulnerable populations, including children. Ethical frameworks for CHIs now recommend vulnerable populations be excluded because they cannot consent to high risk research. In this paper we argue that CHI studies span a wide spectrum of benefit and risk, and that some CHI studies may involve minimal (...)
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  31. t Disability justice, bioenhancement and the escatological imagination.T. Devan Stahl - 2023 - In Devan Stahl (ed.), Bioenhancement technologies and the vulnerable body: a theological engagement. Waco, Texas: Baylor University Press.
  32.  25
    Supporting Community-Academic Research Partnerships: Reflections from the Ground.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2021 - American Journal of Bioethics 21 (10):44-45.
    Currently, there is consensus that community engagement and partnerships are essential to inclusive patient-centered clinical research. Yet there is variation about what it means to do this well an...
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  33. The Epistemic Role of Consciousness.Declan Smithies - 2019 - New York, USA: Oxford University Press.
    What is the role of consciousness in our mental lives? Declan Smithies argues here that consciousness is essential to explaining how we can acquire knowledge and justified belief about ourselves and the world around us. On this view, unconscious beings cannot form justified beliefs and so they cannot know anything at all. Consciousness is the ultimate basis of all knowledge and epistemic justification.
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  34.  1
    Book Review: Ethics Lost in Modernity: Reflections on Wittgenstein and Bioethics by Matthew Vest. [REVIEW]Devan Stahl - 2024 - Studies in Christian Ethics 37 (4):938-941.
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  35. Louisiana's “Medically Futile” Unborn Child List: Ethical Lessons at the Post-Dobbs Intersection of Reproductive and Disability Justice.Laura Guidry-Grimes, Devan Stahl & Joel Michael Reynolds - 2023 - Hastings Center Report 53 (1):3-6.
    Ableist attitudes and structures regarding disability are increasingly recognized across all sectors of healthcare delivery. After Dobbs, novel questions arose in the USA concerning how to protect reproductive autonomy while avoiding discrimination against and devaluation of disabled persons. As a case study, we examine the Louisiana’s Department of Public Health August 1st Emergency Declaration, “List of Conditions that shall deem an Unborn Child ‘Medically Futile.’” We raise a number of medical, ethical, and public health concerns that lead us to argue (...)
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  36.  28
    Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2022 - American Journal of Bioethics 22 (4):81-82.
    For many rare diseases, the availability of effective interventions is limited or non-existent. In this context, clinical research evaluating emerging interventions may be the only potentially “the...
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  37.  57
    The epistemic role of consciousness.Declan Smithies - 2023 - Philosophy and Phenomenological Research 106 (3):778-780.
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  38.  17
    Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study.Stephanie A. Kraft, Devan M. Duenas & Seema K. Shah - 2023 - BMC Medical Ethics 24 (1):1-11.
    Background Standard interpretations of the ethical principle of respect for persons have not incorporated the views and values of patients, especially patients from groups underrepresented in research. This limits the ability of research ethics scholarship, guidance, and oversight to support inclusive, patient-centered research. This study aimed to identify the practical approaches that patients in community-based settings value most for conveying respect in genomics research. Methods We conducted a 3-round, web-based survey using the modified Delphi technique to identify areas of agreement (...)
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  39.  70
    New Atheists on Genesis 1-11 and 19.DeVan Benjamin B. - 2012 - Journal for the Study of Religions and Ideologies 11 (32):37-75.
    When the Neo- or "New Atheist" publishing frenzy climaxed with Richard Dawkins' The God Delusion, Daniel C. Dennett's Breaking the Spell, Sam Harris's The End of Faith, Christopher Hitchens' god is not Great and subsequent titles; New Atheists repeatedly denounced the Bible as dangerously false, suppressive to scientific inquiry, and as inculcating and promoting problematic, contemptible, even abhorrent moral values. The Genesis 1-11 and 19 Creation, Noah, and Lot narratives persist among the New Atheists' favorite targets. Heretofore there has been (...)
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  40. Ideal rationality and logical omniscience.Declan Smithies - 2015 - Synthese 192 (9):2769-2793.
    Does rationality require logical omniscience? Our best formal theories of rationality imply that it does, but our ordinary evaluations of rationality seem to suggest otherwise. This paper aims to resolve the tension by arguing that our ordinary evaluations of rationality are not only consistent with the thesis that rationality requires logical omniscience, but also provide a compelling rationale for accepting this thesis in the first place. This paper also defends an account of apriori justification for logical beliefs that is designed (...)
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  41.  36
    The Epistemic Role of Consciousness By Declan Smithies.Declan Smithies - 2022 - Analysis 81 (4):772-774.
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  42.  55
    Response to Open Peer Commentaries on “Responding to Those Who Hope for a Miracle: Practices for Clinical Bioethicists”.Trevor M. Bibler, Myrick C. Shinall & Devan Stahl - 2018 - American Journal of Bioethics 18 (5):W1-W5.
    Significant challenges arise for clinical care teams when a patient or surrogate decision-maker hopes a miracle will occur. This article answers the question, “How should clinical bioethicists respond when a medical decision-maker uses the hope for a miracle to orient her medical decisions?” We argue the ethicist must first understand the complexity of the miracle-invocation. To this end, we provide a taxonomy of miracle-invocations that assist the ethicist in analyzing the invocator's conceptions of God, community, and self. After the ethicist (...)
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  43. Moore's Paradox and the Accessibility of Justification.Declan Smithies - 2011 - Philosophy and Phenomenological Research 85 (2):273-300.
    This paper argues that justification is accessible in the sense that one has justification to believe a proposition if and only if one has higher-order justification to believe that one has justification to believe that proposition. I argue that the accessibility of justification is required for explaining what is wrong with believing Moorean conjunctions of the form, ‘p and I do not have justification to believe that p.’.
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  44. The Normative Role of Knowledge.Declan Smithies - 2011 - Noûs 46 (2):265-288.
    What is the normative role of knowledge? I argue that knowledge plays an important role as a norm of assertion and action, which is explained and unified by its more fundamental role as a norm of belief. Moreover, I propose a distinctive account of what this normative role consists in. I argue that knowledge is the aim of belief, which sets a normative standard of correctness and a corresponding normative standard of justification. According to my proposal, it is correct to (...)
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  45. A Hedonic Theory of Desire.Declan Smithies - forthcoming - Australasian Journal of Philosophy.
    What is the relationship between pleasure and desire? While some philosophers reduce pleasure to desire, this paper explores the prospects for a hedonic theory of desire, which reduces desire to pleasure instead. I argue that desiring that p is best analyzed not as a disposition to feel pleased that p when you believe that p, but rather as a disposition to feel pleasure in what you imagine when you imagine that p. I give three arguments for this hedonic theory of (...)
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  46. The Nature of Cognitive Phenomenology.Declan Smithies - 2013 - Philosophy Compass 8 (8):744-754.
    This is the first in a series of two articles that serve as an introduction to recent debates about cognitive phenomenology. Cognitive phenomenology can be defined as the experience that is associated with cognitive activities, such as thinking, reasoning, and understanding. What is at issue in contemporary debates is not the existence of cognitive phenomenology, so defined, but rather its nature and theoretical role. The first article examines questions about the nature of cognitive phenomenology, while the second article explores the (...)
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  47. Belief as a Feeling of Conviction.Declan Smithies - forthcoming - In Eric Schwitzgebel & Jonathan Jong (eds.), The Nature of Belief. Oxford University Press.
    This chapter defends the thesis that feeling conviction is sufficient for belief: if you feel conviction that p, then you believe that p. I begin with a neutral characterization of belief in terms of its normative profile: belief is a state that is subject to certain distinctive norms of rationality. The main argument of the chapter is that feelings of conviction are beliefs because they are subject to the same norms of rationality that govern our beliefs. Functionalists often deny that (...)
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  48.  11
    Caretaking through Art: A Sibling Story.Darian Goldin Stahl & Devan Stahl - 2017 - Journal of Medical Humanities 38 (1):77-78.
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  49.  52
    The capacity to designate a surrogate is distinct from decisional capacity: normative and empirical considerations.Mark Navin, Jason Adam Wasserman, Devan Stahl & Tom Tomlinson - 2021 - Journal of Medical Ethics 48 (3):189-192.
    The capacity to designate a surrogate (CDS) is not simply another kind of medical decision-making capacity (DMC). A patient with DMC can express a preference, understand information relevant to that choice, appreciate the significance of that information for their clinical condition, and reason about their choice in light of their goals and values. In contrast, a patient can possess the CDS even if they cannot appreciate their condition or reason about the relative risks and benefits of their options. Patients who (...)
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  50. Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care.Laura Guidry-Grimes, Katie Savin, Joseph A. Stramondo, Joel Michael Reynolds, Marina Tsaplina, Teresa Blankmeyer Burke, Angela Ballantyne, Eva Feder Kittay, Devan Stahl, Jackie Leach Scully, Rosemarie Garland-Thomson, Anita Tarzian, Doron Dorfman & Joseph J. Fins - 2020 - Hastings Center Report 50 (3):28-32.
    In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both (...)
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