Rare neuromuscular diseases are a group of pathologies characterized by a progressive loss of muscular strength, atrophy, fatigue, and other muscle-related symptoms, which affect quality of life levels. The low prevalence, high geographical dispersion and disability of these individuals involve difficulties in accessing health and social care services. Teleassistance is presented as a useful tool to perform psychosocial interventions in these situations. The main aim of this research is to assess the effects of a teleassistance psychosocial program on the QoL (...) levels of people with RNMDs who have different levels of disability. A sample of 73 participants was divided into an experimental group, which participated in the intervention, and a control wait list group. QoL was evaluated through the SIP and the SF-36, and disability through the WHO-DAS II. The participants with a moderate to severe level of disability were those who most benefited from the intervention. The results also revealed that the psychosocial teleassistance program was suitable to improve physical and psychosocial aspects of people suffering from a rare neuromuscular disease with a moderate level of disability, but just psychosocial aspects in those with a severe level of disability. (shrink)

Advances in genomics have led to calls for developing population-based preventive genomic sequencing programs with the goal of identifying genetic health risks in adults without known risk factors. One critical issue for minimizing the harms and maximizing the benefits of PGS is determining the kind and degree of control individuals should have over the generation, use, and handling of their genomic information. In this article we examine whether PGS programs should offer individuals the opportunity to selectively opt out of the (...) sequencing or analysis of specific genomic conditions or whether PGS should be implemented using an all-or-nothing panel approach. We conclude that any responsible scale-up of PGS will require a menu approach that may seem impractical to some, but that draws its justification from a rich mix of normative, legal, and practical considerations. (shrink)

One of the most pleasurable aspects of video games is their ability to induce immersive experiences. However, there appears to be a tentative conceptualization of what an immersive experience is. In this short review, we specifically focus on the terms of flow and immersion, as they are the most widely used and applied definitions in the video game literature, whilst their differences remain disputable. We critically review the concepts separately and proceed with a comparison on their proposed differences. We conclude (...) that immersion and flow do not substantially differ in current studies and that more evidence is needed to justify their separation. (shrink)

The Routledge Companion to Performance Philosophy is a volume of especially commissioned critical essays, conversations, collaborative, creative and performative writing mapping the key contexts, debates, methods, discourses and practices in this developing field. Firstly, the collection offers new insights on the fundamental question of how thinking happens: where, when, how and by whom philosophy is performed. Secondly, it provides a plurality of new accounts of performance and performativity as the production of ideas, bodies and knowledges in the arts and beyond. (...) Comprising texts written by international artists, philosophers and scholars from multiple disciplines, the essays engage with questions of how performance thinks and how thought is performed in a wide range of philosophies and performances, from the ancient to the contemporary. Concepts and practices from diverse geographical regions and cultural traditions are analysed to draw conclusions about how performance operates across art, philosophy and everyday life. The collection both contributes to and critiques the philosophy of music, dance, theatre and performance, exploring the idea of a philosophy from the arts. It is crucial reading material for those interested in the hierarchy of the relationship between philosophy and the arts, advancing debates on philosophical method, and the relation between Performance and Philosophy more broadly. (shrink)

This paper examines how the application of legal fiduciary principles , can serve as a framework to promote management of clinical genomic “incidental” or secondary target findings that is patient-centered and consistent with recognized patient autonomy rights. The application of fiduciary principles to the clinical genomic testing context gives rise to at least four physician fiduciary duties in conflict with recent recommendations by the American College of Medical Genetics and Genomics . These recommendations have generated much debate among lawyers, clinicians, (...) and bioethicists hence I believe this publication will be of value and interest to your readership. (shrink)

In their article “Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?” Bayefsky and Berkman briefly mention that: “[s]ome are...

The value that bioethics has added to the discourse between science and the humanities is indispensable. However, there is a need that when bioethics is taught that the focus be not solely on the identification and analysis of the problem, but also on critical reflection to enable a student to internalize that which they have experienced. This article provides an analytical description of the use of learning logs as a tool of reflection and metacognition in bioethics courses, based on the (...) experience of educators at the Faculty of Sciences of the Universidad de la República (Uruguay). An analysis of students’ learning logs shows that this tool promotes complex reflective and self-reflective processes in which the development of skills such as abstraction, argumentation and problematization is manifested in an integrated way. (shrink)

Previous studies have documented the fallibility of attempts by surrogates and physicians to act in a substituted judgment capacity and predict end-of-life treatment decisions on behalf of patients. We previously reported that physicians misperceive their patients' preferences and substitute their own preferences for those of their patients with respect to four treatments: cardiopulmonary resuscitation in the event of cardiac arrest, ventilator for an indefinite period of time, medical nutrition and hydration for an indefinite period of time, and hospitalization in the (...) event of pneumonia. (shrink)

Despite the emphasis placed by most curricula in the development of social and emotional competencies in education, there seems to be a general lack of knowledge of methods that integrate strategies for assessing these competencies into existing educational practices. Previous research has shown that the development of social and emotional competencies in children has multiple benefits, as they seem to contribute to better physical and mental health, an increase in academic motivation, and the well-being and healthy social progress of children. (...) This study aims at assessing the possible changes in children’s self-esteem, socio-emotional competencies, and school-related variables after participating in the Learning to Be project (L2B) project.Methods:This quasi-experimental study included an intervention group (L2B) and a control group. The participants were 221 students in primary education (55.2% girls) between the ages of eight and 11 (M= 9.31; SD = 0.89). The L2B intervention program took place over a period of 5 months. The assessment was carried out twice, before and after the intervention through three main evaluation instruments: the Rosenberg’s Self-Esteem questionnaire, the Socio-Emotional competence questionnaire (SEQ), and self-report scales for measuring school difficulties, school engagement, opinions about school, and school absence. Ten schools from different Spanish provinces participated.Results:The results indicate that those participants in the experimental group show higher self-esteem, better responsible decisions, and higher self-awareness than those in the control group. There were no other statistical differences between groups.Conclusions:The results of this work suggest that the implementation of the L2B program did not improve social and emotional competencies in primary school students. Further research related to how include formative assessment in SEL programs is needed. (shrink)

Dentro de la historia de la encuadernación española destaca el florecimiento del estilo mudéjar entre los siglos XIII y XVI, sobre todo en la península Ibérica, sobresaliendo los trabajos realizados en algunas ciudades como Toledo. La Biblioteca Capitular de la Catedral de Toledo dispone de uno de los grupos más importantes de España, cuantitativa y cualitativamente, aunque su estado de conservación no es el más adecuado en muchos de los ejemplares. El presente trabajo pretende estudiar y analizar los diferentes tipos (...) de encuadernaciones mudéjares con lacerías, tipo de decoración muy propio de ciudades como Toledo, Salamanca y Barcelona. Se han estudiado las estructuras decorativas y los elementos artísticos empleados, las técnicas de decoración y de construcción, así como los materiales utilizados en la elaboración, con lo que hemos podido establecer el origen o procedencia de cada encuadernación en función de la estructura decorativa, de los motivos decorativos individuales, de las filigranas de las guardas originales y del tipo de cabezadas. (shrink)

El artículo constituye un acercamiento a las razones que sustentan la necesidad de elevar la calidad de la orientación a las familias de niños en la primera infancia y su objetivo consistió en capacitar al personal de la salud para desarrollar la orientación familiar en función de la prevención de desviaciones en el desarrollo en esta etapa. En él se aborda el rol que tiene la familia en la formación de los niños y la incidencia de los médicos y enfermeras (...) en su orientación; se encuentran reflexiones y comentarios sobre cómo elevar la calidad de la orientación para que la familia pueda desarrollar, en las condiciones de convivencia familiar, la prevención de desviaciones en el desarrollo mediante la realización de un proceso educativo de calidad. The article is an approach to the reasons that support the need to improve the quality of the guidance given to families of early childhood children and its objective consisted on training health staff to develop family guidance according to the prevention of deviations in development during this stage. It deals with the role family plays in children's education and the impact of doctors and nurses on its guidance. Thoughts and comments on how to improve the quality of guidance can also be found so that the family can develop, on family living conditions, the prevention of deviations in development through a quality educational process. (shrink)

Volume 19, Issue 7, July 2019, Page 34-36.

Los artículos de este segundo número monográfico dedicado a Descartes son un fruto más del proyecto de investigación -financiado por el Ministerio de Ciencia e Innovación, [Referencia PID2021-126133NB-I00]- que lleva por título: Éticas y metafísica de los afectos. Las génesis modernas del presente actual (EMAP). Se ofrecen a continuación relecturas cartesianas que ponen el acento en la revisión de ciertos tópicos atribuidos al pensamiento del padre de la modernidad, más mencionado que leído y estudiado.

Descartes consolida el paso de la ciencia de la verdad a la ciencia del hombre. En esta prima un cura sui, que acabará fortaleciendo al sujeto interiormente y desenfocando al otro. Todo hombre podría ser sabio; si bien, no desde la experiencia de la conciencia como ejercicio metódico y teórico del alma; pero sí como forma de vida que educa el fortalecimiento de la voluntad. La generosidad será la forma de la virtud, y si bien esta incluye las formas del (...) amor, el cogito cartesiano no logra salir de la auto-referencialidad. (shrink)

Nature of natura: un approach on mystic and science in peninsular Iberian medieval Franciscanism The present paper shows the relationship between the concepts Natura and Nature at Castillan Court and Franciscan Peninsular thinking on XIII century. Especially we study this distinction in Juan Gil de Zamora wisdom methodology of natural philosophy, equilibrating science, and mystical approach.

El trabajo presenta las distintas actividades científicas que con motivo del cuarto centenario del fallecimiento de Francisco Suárez se han celebrado y se han organizado durante el año 2017 o el curso académico 2017-18. En las iniciativas presentadas se advierte la vigencia de la reflexión suareciana, no sólo por su relevancia histórica, sino también como un pensamiento con el que poder replantear los retos de nuestra situación contemporánea.

Abstract[I] want to single out one phenomenon that could be called the ‘politics of sources’. It points to the extent to which the histories that both scientists and historians can write are artifacts of the available sources. The Rockefeller Foundation not only opened its archives very early on for historical work but also invested a lot in making the archives readily available for historical exploration. During the 1980s, many young historians took advantage of this opportunity. Thus, in a relatively early (...) phase of the professional historiography of molecular biology, one could have gained the impression that the development of the new biology as a whole was a bio‐politically directed enterprise of the Rockefeller Foundation sustained by the vision that social processes could ultimately be controlled by biological processes. (shrink)

Los textos que se presentan a continuación aúnan a reconocidos estudiosos en el cartesianismo, junto a investigadores más nóveles. Son fruto además de un proyecto de investigación financiado por el Ministerio de Ciencia e Innovación, [Referencia PID2021-126133NB-100] que lleva por título: Éticas y metafísica de los afectos. Las génesis modernas del presente actual (EMAP). Se ofrecen, por tanto, los estudios que siguen como resultados de este proyecto, que inició su andadura en septiembre de 2022.

El día dieciséis de julio de este año, un día después de la festividad de san Buenaventura, este santo franciscano, doctor de la Iglesia, recibió un regalo: una de las personas que aquí y ahora más conocía de su obra, pensamiento y fuentes, iba a ir a visitarlo. Ambos tenían, al fin, la oportunidad de conocerse en persona. Para sus amigos fue un regalo muy caro. Nuestro amigo Francisco de Asís Clavero Blanco nos dejó físicamente, pero sus estudios y su (...) obra perdura y perdurará con nosotros.' Decir que alguien conoce a san Buenaventura no es fácil, pues en este pensador franciscano se conjugan aspectos filosóficos, teológicos, históricos y espirituales que llevan en sí una carga histórica compleja que se desarrolla en un tiempo, a la vez, complejo, apasionante y alejado en el tiempo: el siglo XIII. No en vano, la figura de san Buenaventura fue tildada por algunos como "la más medieval de la filosofía del Medioevo".Pero Francisco de Asís Chavero se preparó para afrontar este reto y más. Nacido en Rivera del Fresno en 1945, profesó en la Orden Franciscana en la Provincia Bética el 6 de agosto de 1967. Se ordenó presbítero el 21 de julio de 1973. Cursó filosofía y teología en el Centro de Estudios Teológicos de Sevilla, en la Facultad de Teología de Granada, en el Pontificio Ateneo Antonianum y en el Centro de Investigación de Quarachi de la Orden Franciscana situada en Grottaferrata en Roma. Estos estudios hicieron que quedara corta su titulación de Licenciado en S. Teología, sección Histórico?Dogmática. En el momento en el que le sorprendió la muerte era profesor de Teología Sistemática, Antropología Teológica y Pensamiento Franciscano en el Instituto Franciscano de Murcia.El perfil de su formación, trabajo y dedicación nos ayuda a comprender por qué a Francisco de A. Chavero no se le escapaba ningún detalle del pensamiento bonaventuriano. No había aspecto de su pensamiento filosófico, teológico, espiritual o franciscano que no conociera. Su obra, sus ediciones, las fuentes, los estudios e interpretaciones sobre el doctor Seráfico eran, no sólo conocidas por él, sino también estudiadas, pensadas e interpretadas. De todo lo que acabo de decir dan fe sus escritos y las extensísimas notas a pie de página que nos regalaba. Hablando de su trabajo siempre mostraba la visión de fondo que impregnaban sus estudios: el de historiador de la teología. Esto no significa que desde esta perspectiva histórica no fuera capaz de percibir y apuntar conceptos nuevos y visiones originales.Francisco de Asís Clavero Blanco colaboró en numerosas revistas como Verdad 1, Vida, Carthaginensia, Estudios Franciscanos, Doctor Seraphicus, Themata, Archivum Franciscanum Historicurn, etc. Era miembro de la Sociedad Escotista Internacional , del Centro di Studi Bonaventuriani , Asociación Hispánica de Estudios Franciscanos y compañero de la Sociedad Española de Filosofía Medieval . Me gustaría en estas páginas repasar aunque sea brevemente el legado intelectual de este pensador franciscano. (shrink)

RESUMENEl estudio se centra en la filosofía práctica cartesiana: la dimensión técnica y la moral. Una parte de su filosofía muchas veces poco estudiada. A lo largo del Discurso del Método, Descartes parece dialogar con Michel de Montaigne para superar su posición escéptica. Lo consigue desde el punto de vista teórico, pero no en relación a la acción moral. En ese ámbito, Descartes lejos de alejarse de las posiciones montañistas, las reproduce. Las reglas de la moral provisional ya están en (...) Montaigne y, como él, Descartes se tiene que conformar con lo probable en la acción moral.PALABRAS CLAVEDESCARTES, MONTAIGNE, ÁMBITO TEÓRICO, ÁMBITO PRÁCTICOABSTRACT This study is about Descartes’ philosophy: both its technical dimension and morality. Little attention has been paid to this part of his philosophy. Along the Discourse on Method, Descartes seems to speak with Michel de Montaigne with a view to overcome his sceptical position. He reaches this goal from the theoretical point of view, but not in the practical realm. In this area Descartes, far from moving away from Montaigne’s position, reproduces it. The rules of provisional morality are already in Montaigne and, like him, Descartes has to conform to a probabilistic approach in the moral action.KEY WORDSDESCARTES, MONTAIGNE, THEORETICAL REALM, PRACTICAL REALM. (shrink)

The question about the faith and the science in the Middle Ages is very broad. For this reason, this paper reflects the thoughts of the author which are very significant for the comprehension of transition from the generation who faced the challenges of the Aristotelism in the 13th century and the Syllabus from 1277, to the generation which discussesed several questions related to the anthropological and metaphysical issue. In this respect Gonsalvus Hispanus, Duns Escoto’s teacher, helps us to understand the (...) reception of the idea of science in the post-condemnation context. We specially pay our attention to the 9th Question in order to consider the relationship between science and faith, knowledge of authority and scientific knowledge, science and wisdom. (shrink)

People's time is a limited resource and, in economic evaluations that adopt a societal perspective, it is important that it is valued and accounted for. Yet, in economic evaluations of interventions for children and young people (CYP), attempts to take into account the opportunity cost of their time are rare. To understand why this is the case, we need to first understand what views health economists hold in relation to CYP time, and what challenges they face in incorporating this in (...) their evaluations. We planned and carried out an international survey of health economists. We used a combination of approaches to identify potential survey respondents (the survey's sampling frame), we developed a questionnaire that sought to capture respondents' views and practice through close- and open-ended questions, we piloted the questionnaire through a series of cognitive interviews, and we e-mailed unique links to the final version of the questionnaire to 1956 individuals in the sampling frame. We analysed data using quantitative (descriptive and inferential statistics) and qualitative (thematic analysis) methods. We received 274 complete responses. Most respondents (87%) believe CYP time should be considered for inclusion in economic evaluations conducted from a societal perspective. However, they identify a number of obstacles to doing so, most prominently uncertainties around appropriate practice (e.g., when CYP's time should or should not be included in calculations), methodological gaps (e.g., what value to attach to CYP's time), and practical difficulties in measuring displaced time in CYP. Reporting on their own practice, most respondents found it challenging to consider CYP time in their studies, and stressed the need for clear guidance on when, and further research on how, to appropriately account for CYP's time in economic evaluations. We offer our views on how to move the topic forwards and make suggestions further research. (shrink)

The high levels of land use, inputs, and investment, along with the specific forms of organization and management that characterized Cuba's state extensive growth model during the 1980s, could not overcome the challenges posed by the integrated care required by the sugarcane crop and corresponding industrial activities. Starting in 1993, large state farms have been converted into Basic Units of Cooperative Production with some degree of autonomy. Although first-year production results are not satisfactory, it is too early to evaluate their (...) performance. Their establishment, however, is a step in the right direction to alleviate the problems that the previous forms of organization and management inherent to the state extensive growth model were unable to solve. (shrink)

Partiendo de una situación singular en lo referente a su origen y creación, la Universidad Politécnica de Madrid ha desarrollado procedimientos para identificar, ordenar y compartir los activos intelectuales de sus miembros con el fin de explotar sus recursos de conocimiento y competir en un entorno universitario cada vez más competitivo en la captación de buenos estudiantes, recursos de investigación y posición internacional. En este artículo se describen las principales actuaciones y logros que se han desarrollado desde el punto de (...) vista de los recursos educativos (integración de los nuevos estudiantes, desarrollo de competencias genéricas, plataformas experimentales a través de la red y recursos en abierto), espacios y estructura organizativa (Grupos de Innovación Educativa y políticas asociadas), sistemas de información (DataWareHouse y estudios basados en cuestionarios) y especialmente las personas como elemento insustituible en el proceso de gestión del conocimiento. Todo ello con un planteamiento integral que busca la combinación sinérgica de la capacidad de gestión de la información y recursos con la capacidad creativa e innovadora de los seres humanos. (shrink)

Intentaremos mostrar en este estudio qué significa la expresión “hermenéutica en san Buenaventura”. Esto significa que no pretendemos hacer una lectura hermenéutica del pensamiento bonaventuriano y que situados desde una perspectiva de historia del pensamiento nos preguntaremos si realiza lo que podría señalarse en términos modernos una “teología hermenéutica” o más bien una “hermenéutica teológica”, es decir, una aproximación y lectura teológico-filosófica como herramienta para conseguir un fin teológico determinado. Para ello realizaremos una lectura del Prólogo del Breviloquium, sin duda, (...) el texto que mejor muestra la “hermenéutica en Buenaventura” como instrumento privilegiado para presentar la ciencia teológica como camino de comprensión de la Sagrada Escritura. (shrink)

The relevance of social norms for understanding appropriate behaviour in context has taken central stage in politeness research in recent years, and particularly in studies of workplace interaction. As an example of this research, this paper explores the way in which a group of nurses interacting with their colleagues negotiates complaints. The data were collected in a ward of a public healthcare institution in New Zealand and consist of audio and video recordings of four roster meetings involving nurses and nurse (...) managers. Instances of nurses’ complaints are explored from an interactional sociolinguistic point of view, allowing the researcher to investigate emergent facework. The findings suggest that multiple ingroup and outgroup memberships, achieved through the dynamic use of personal pronouns, enact preferred politic behaviour for both, transactional and relational goals. In addition, nurses’ convergence in their display of socio-pragmatic norms governing their complaining practices suggests that this group of nurses belongs to the same workplace community. Finally, strong emphasis is placed on the role that complaining plays in the positive presentation of nurses’ identities. (shrink)

According to Hayek the democracy is only possible with a system of free market. If this is true, the western democracies are full of "aporias" and contradictions which end up in continual disillusions. Democracy has grown amongst capitalist societies which currently show these deficiencies such as a low participation of citiziens in the public life, the priority given to material goods rather than spiritual ones, etc. This article shows how these deficiencies are the central points in the system of Adam (...) Smith's free market, the father of the capitalist system. (shrink)

Recesión de J. M.ª Blanco White, Ensayos sobre la intolerancia. edición de M. Moreno Alonso, Caja San Fernando, Sevilla, 2001.